An Australian-born singer, actor, and artist, Sean Millis’ parents, Nicole and David Millis, have supported him through his career journey and his battle with a rare disease. He suffers from Hunter syndrome, a rare genetic disorder that affects the ability to digest specific sugar molecules.
As a result of the disorder, Millis faced a lot of difficulties and targeted bullying while growing up. Sean has to travel to the hospital every week and go through nine hours of infusions since childhood.
From participating in The Voice Australia Season 12 ( in 2023) to landing his movie role in Furiosa: A Mad Max Saga (2024), he is already on track to stardom. There is no denying that his father/mother and his two sisters are proud of him.
Quick Facts
Name | Sean Millis |
Date Of Birth | March 19, 2001 |
Place Of Birth | Melbourne, Australia |
Age | [age dob=”03/19/2001″] Years Old |
Weight | 172lbs/78kg |
Height | 180cm |
Eyes | Blue |
Vocal Range | Baritone |
Nationality | Australian |
Profession | Singer, Actor |
Gender | Male |
Sexual Orientation | Straight |
Active Career | 2022-Present |
Social Media | YouTube, TikTok, Instagram, Twitter (X) |
Meet Sean Millis’ Parents, David and Nicole– Mother Is CEO Of Rare Voices Australia
Born on March 19, 2021, Millis is the oldest of three children of David Millis and Nicole Millis. His parents have been married for over 25 years—they tied the knot on April 10, 1999.
The Australian-born singer and actor’s father prefers to avoid the media. According to David’s Facebook profile, he is an alum of Parade College and works at David J Millis Plumbing.
Sean’s mother, Nicole, frequently appears on social media and interviews. She is a social worker who has helped with disabilities, families, and program management.
She is the CEO of Rare Voices Australia (2016—present) and leads the team in highlighting the unmet requirements in the rare disease space in Australia.
Nicole is also a consumer nominee on the Life Savings Drug Program Expert Panel at the Australian Government Department of Health (August 2018—present).
Her journey into community work and rare disease awareness started after the birth of her son, Sean Millis, suffering from Hunter Syndrome.
According to her LinkedIn profile, she formerly started her career as a Social Support Manager/Quality Assurance at a non-profit, BASScare (1998- 2000). Then, she was Interchange Inner East’s Flexible Family Support Program Coordinator from 2003 to 2004.
She then worked in Stepfamilies Australia and Mucopolysaccharide & Related Diseases Society Aust. Ltd. Her main objective is to help people who need it.
Nicole holds a Bachelor of social work degree from the University of Melbourne. In 1997, she received the Recipient of the Isobel Strachan Award (excellent in fieldwork).
Check out the list of committees Sean’s mother, Nicole, is in:
- National Patient Organization Standing Committee
- Victorian Newborn Screein Committee – Consumer Representative
- International Rare Disease Research Consortium (IRDiRC) Patient Advocacy COnstituents Committee
- EURORDIS Rare Disease Day Streeting Committee
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How Nicole Millis Saved Her Son Sean’s Life?
During her interview with Med News in 2023, Nicole shared how Sean was born, his diagnosis with Hunter syndrome, and what she had to go through to get treatment. In addition, she admitted to being proud of her son and praised her hardworking and brave son.
She stated that her son was born premature and had to go through several tests to learn about the condition.
At that time, Sean was the youngest to be diagnosed with Hunter syndrome in Australia. As a result, his brain was affected in two-thirds since he was nine months old.
Even after several surgeries, no cure was found. In a quest to rescue her son, she found out there was a drug overseas for treatment. So, she contacted the company but it would take more than 18 months even if everything were to go as planned.
Lobbying the government was a more viable and quick approach. So, Nicole convinced herself and her husband to quit her job and lobby the government. After nine months of intense work, the drug was accessible to Sean, which eased his situation.
In the same interview, Sean Millis expressed his gratitude to his family, especially his mom, referring to her as his “inspiration.”
“Mum is inspirational. She’s tough and brave – like really brave. She fought for my lifesaving treatment. She is also really loving, and I have so much respect for what she does. She’s powerful, she works super hard, she’s a fighter.”
Sean Millis
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Sean Millis Has Two Sisters: Who Are They?
Sean Millis has two beautiful sisters, Claire and Amy, who are very proud of him.
Sean posted a video of himself and Amy, his youngest sister, singing together on TikTok. Both of his sisters love spending time with Sean.
Did Sean Millis Audition for The Voice Australia?
Sean Millis auditioned for The Voice Australia in Season 12. He sang 7 Years by Lukas Graham and made Jessica and Rita Ora turn the chair. Sean joined the team, Jessica. After he sang the song, his nurses joined the stage to support him.
Before the audition, Sean took the test, and he only had 67% functionality. Since Sean has to go to the hospital every week, he has a good bond with his nurses.
Sean proved that his disease would not stop him from pushing his limits and doing whatever he wanted to. He loves singing because it is fun. His family and nurses supported him.
In The Voice Australia, he chose Jess because she is from Australia, and it would be easier to contact her after The Voice. She is also an actress.
Is Sean Millis In A Movie?
Sean Millis is in a movie named Furiosa: A Mad Max Saga, where he portrays the character, Lone War Boy.
The movie was released on May 24, 2024, and stars Hollywood elites like Chris Hemsworth, Anya Taylor-Joy, Tom Bruke, Nicholas Hoult, Xanthia Marinelli, and Quaden Bayles.
Sean is looking forward to continuing his acting career. The character he played in Furiosa: A Mad Max Saga got a lot of positive feedback.
A Rare Disability That Sean Millis Got- A Hunter Syndrome
Sean Millis has a rare genetic disorder, Hunter Syndrome. This disorder doesn’t let the body properly digest certain sugar molecules. It affects his health such as lung capacity, hearing, heart, teeth, nose, ears, and joints.
Every week, Sean has to visit the hospital to get nine hours of infusions to stay healthy. He gets Weekly IV poles and needles. His nurses are there with him to help him to get better.
It is an incurable disease, and he has to stay aware of it. Sean cannot control his health, so he lives his life as today is his last day on earth.
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Conclusion
Sean Millis has a very inspiring story about his life, from lobbying the government to get treatment to being a singer, actor, and artist. He definitely breaks through various barriers to overcome the narrow mindset.
The Voice Australia gave him a larger perspective on life, public recognition, and life achievement. Sean has set an example to people who are differently able to push their limits.
Sean is pushing his dream of becoming an actor and releasing new songs in the upcoming days. Anything can be achieved with the right support and determination to face the challenges.
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Manish Dangol is a dedicated Content Writer with a Bachelor of Business Administration (BBA) degree from Pokhara University, completed in 2021. He began his career as a Customer Service Representative at Innovate Tech, where he honed his communication, multitasking, patience, active listening, and problem-solving skills. Subsequently, he worked as a Virtual Assistant at Telematics Tech, enhancing his organizational skills, task management, and attention to detail.
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